Thursday, July 9, 2009

Pain With a Personal Touch - blog #1

Hi: I know there are a lot of people in pain in the world. I am starting this blog as a discussion about pain from a personal point of view. I have a combination of ailments that recently caused me to go on long-term disability from my sales career of 25 years. Diabetic Peripheral Neuropathy, Restless Legs Syndrome, Sleep Apnea and Type II Diabetes have caused me to take a major detour in my life-plans.

I will discuss items like the following:
The pains I feel, how I deal with them; what works, what doesn't; Doctors I've seen and liked, and some I've seen and didn't like, and what I still want to try. I will discuss the frustration of paperwork and filing for disability insurance and social security, the guilt, the need for more money, not being able to do the things I used to do, and how I get through the tough days.

I may be crazy, but this story and where I'm going to start it are true....About 10 years ago, before my first divorce, I was praying. I was praying to the lord to help me because I was losing my patience with my wife. She was in constant pain. She had been through chemo and radiation to combat and beat Ewings Sarcoma. After 21 surgeries to try and keep her leg and the brittle bone together, and delivering the first of our two beautiful baby girls, she had a hip disarticulation done at the National Cancer Institute in Washington D.C. The main nerves in her leg had been so abused during all the treatments that they finally created pain that could not be relieved. So the leg came off - but the nerve pain continued...even after several of the treatments that I am now going through(and will discuss in future blogs) for my Diabetic Peripheral Neuropathy. She started adding alcohol and it seemed like they were over-doing the prescriptions...I couldn't take it anymore...

God What Should I DO??? A huge rush came over me like NEVER before in my life. He clearly said: "empathize with her pain"...I tried and tried but I couldn't really understand her anymore. I drifted away...8 years and two divorces later that changed. I was in terrible pain every day.
I was diagnosed fairly quickly as having Diabetic Peripheral Neuropathy. I have been in chronic pain for the last 3 years.

In only 3 short years I've gone from a fairly healthy hard-working man, to a person no longer working, taking Dilaudid and Lyrica and Cymbalta for my pain. I had a spinal cord stimulator implanted just over a year ago...It all happened so fast...I can now empathize with her pain . It is difficult to believe, but I too now have chronic nerve pain. So here we begin. Thanks for listening!

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